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 My Marvellous Guide to being told you have heart failure

My Marvellous Guide to being told you have heart failure

Heart failure affects close to 1,000,000 people in the UK, so you are not alone. This is the last time we will refer to heart failure as such; we all like to call it an inefficient heart because that’s what it is. Sufferers and their families are at the heart of what we do. All the information we produce, just like this booklet, is developed by people who have an inefficient heart.
My Marvellous Big Pocket Guide to Heart Failure

My Marvellous Big Pocket Guide to Heart Failure

Our pocket guide will provide you with some initial information, answers, support, and give examples of how you can live life well with a diagnosis of heart failure. This “Marvellous Pocket Guide” is as a result of the experience gained by our marvellous team of patients here at The Pumping Marvellous Foundation who started just like you, with a diagnosis of heart failure.
My Marvellous Symptom checker

My Marvellous Symptom checker

Use our Marvellous Symptom Checker to work out where you are on the NYHA Scale and to learn about the different levels of heart failure symptoms.
My Appointment Dairy

My Appointment Dairy

Use our printable Appointment Diary in conjunction with 'My Marvellous Symptom Checker' to keep track of how you're feeling, dates of appointments and discussion points for within your appointment.
Navigating your way around heart failure treatments

Navigating your way around heart failure treatments

Several medications are designed to improve/stabilise the heart muscle’s pumping function. The type of medication used may vary depending on your ejection fraction. These medications are designed to: relieve congestion, improve heart function, reduce the risk of you being hospitalised due to Heart Failure, improve your prognosis and reduce your risk of dying prematurely...
My Marvellous Guide to medicines for heart failure

My Marvellous Guide to medicines for heart failure

Welcome to the “Marvellous Guide for Medicines for Heart Failure”. Over the last twenty years there have been significant developments in the treatment for heart failure, and these have been shown to improve your quality of life and extend your life expectancy. There has also been tremendous development in care and services that will support you going forward to live well with heart failure.
My Marvellous Guide to having a cardiac device fitted

My Marvellous Guide to having a cardiac device fitted

A number of heart failure patients now live with complex cardiac devices. This Marvellous Guide has been created by the Pumping Marvellous Foundation (PMF) and Patient Educators who all live with a cardiac device. The aim of the guide is to give you the information that we HOPE will be helpful when you are about to have your cardiac device fitted. There is technical information here in ‘patient speak’ and discussion around the various emotions that you may be experiencing at this time.
Marvellous Guide to my ECHO

Marvellous Guide to my ECHO

Welcome to the Marvellous Guide to having an Echocardiogram (echo). The Pumping Marvellous Foundation is the UK’s patient led heart failure charity, however this guide is for anyone who is having an echo regardless of the reason why. As with all our guides, it has been put together by our marvellous team of patient educators. We would also like to thank the marvellous clinical technical team at Grantham Hospital, part of the United Lincolnshire Hospitals NHS Trust, who ensured that all the clinical details in this booklet are correct.
My Marvellous Guide to PPCM (Peripartum Cardiomyopathy)

My Marvellous Guide to PPCM (Peripartum Cardiomyopathy)

This guide has been created by women who have all been diagnosed with Peripartum Cardiomyopathy (PPCM). The Foundation wishes to express a huge vote of thanks to Emma, Tracy, Aleena, Sarah-Jayne, Paula, Janey and Claire, who came together to share their emotions around their own experience of being diagnosed with this condition, many a tissue was required as the women discussed the impact on them and their families.
My Marvellous Guide to caring for heart failure patients

My Marvellous Guide to caring for heart failure patients

You may live 24 hours or 240 miles away, or share a 24 hour day with someone who has heart failure. To them you are their significant other, someone that they recognise as being instrumental in successfully living with heart failure. This “Marvellous Guide” has been written by fellow carers and patients with heart failure as a result of their day-to-day experiences of caring and living with heart failure, their joys and tribulations, their coping strategies, and their emotional journey.
My Marvellous Guide to walking a day in my shoes

My Marvellous Guide to walking a day in my shoes

Relationships with family and friends can be frustrating and even damaging as a result of not being able to fully understand the challenges of living with heart failure. This guide, therefore, seeks to explain what living with heart failure is like for the patient, seen through their eyes, in their shoes.
My Marvellous Guide to travelling with heart failure

My Marvellous Guide to travelling with heart failure

Welcome to the Marvellous Guide to Travelling with Heart Failure. We know people with heart failure, along with their carers and families, very much see going on holiday as getting back to normal after a diagnosis of heart failure. With the availability of better treatments and care, travelling with heart failure, especially abroad, has become more achievable.
My Marvellous Guide to using GTN

My Marvellous Guide to using GTN

Glyceryl trinitrate (GTN) is prescribed to relieve angina. Angina is pain, discomfort or tightness in the chest due to narrowing of the arteries supplying the heart muscle with blood (coronary heart disease).
Sick day rules whilst living with heart failure

Sick day rules whilst living with heart failure

Download our Sick Day Rules card.
Palliative Care in heart failure – what may matter to you

Palliative Care in heart failure – what may matter to you

From the moment you’re diagnosed with Heart Failure you’re opened up to a whole new world. Changes seem to come at you all at once. You will experience new terminology, tests, scans, lifestyle changes and a bewildering array of medication.

Support guides in development

  • My Marvellous Guide to iron deficiency and heart failure
  • My Marvellous Guide to heart valves
  • My Marvellous guide to HFpEF
  • My Marvellous guide to nutrition
  • Talking Hearts
  • Diagnosed with Heart Failure – How much do you want to know?

Secret sauce

Dictionary – “A special quality or feature regarded as the chief factor in the success of something or someone.”

So, what’s your “Secret Sauce?” What makes you tick?

At Pumping Marvellous, we know it takes some real inner drive to live well with heart failure. Pumping Marvellous are Secret Sauce catalysts; we draw out people’s inner Secret Sauce, people’s superpowers and enable other people to learn from other people’s experiences.

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About us

Who, What, Why?

We are the Pumping Marvellous Foundation, the UK’s heart failure patient-led charity. Find out more about why we do what we do.
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Get involved

The Pumping Marvellous Foundation are a UK patient led heart failure charity. To find out how you can get involved read more.
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The Pumping Marvellous charity shop is full of our own branded merchandise. By purchasing our merchandise, you will help us fund our projects.
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