Pumping Marvellous Foundation
Heart failure affects up to 920,000 people across the UK. Prognosis is often poor and symptoms are debilitating. People who have heart failure have to manage both their physical and psychological symptoms. There is a lack of focus, engagement and action and this presents a tsunami of challenges for health economies and patients.
A swift and efficient diagnosis is very important for better outcomes in heart failure. We also know that patients treated by specialists have a better quality of life and prognosis and if patients have a specialist heart failure nurse they have a better quality of life. NICE guidelines help healthcare decisions make the correct decisions and these are not consistently followed. The Pumping Marvellous Foundation advocates for the right treatment and care across the UK. We partner with all stakeholders to ensure that the patient voices are heard and we hold decision makers accountable to ensure decisions are based around patients needs.
The Pumping Marvellous Foundation was founded by a patient
Founded by Nick Hartshorne-Evans who was 39 when diagnosed with the condition after a viral attack on his heart. Dismayed that there was not a charity focussed on the needs of the patient he set the organisation up to advocate and provide help and support for people and their families having to manage HF. The Pumping Marvellous Foundation is led by it’s Patients. It is guided by it’s world class HF specialists on it’s Clinical Board led by Professor Martin Cowie of Imperial College, London.
Our most popular pages
Find you local heart failure nursing team by searching on your postcode.
Our safe and moderated closed Facebook Community Group (we only allow entrance to patients, carers and family members affected by heart failure)
Our campaign page on Facebook “Heart Failure Aware” – For the latest information on the things that matter