New PPCM Awareness Steering Committee

PPCM Awareness Steering Committee

PPCM Awareness Steering Committee – A New Birth of Awareness for Heart Failure Mums

Inaugural Meeting for PPCM Awareness Steering Committee: A ground breaking step forward for The Pumping Marvellous Foundation who have been supporting mothers with Peripartum Cardiomyopathy (PPCM), and helping in every way we can to raise PPCM awareness. A number of mums came together, originally via Pumping Marvellous, in order to share experiences of what happened to themselves when they had their babies, and went on to have this serious form of heart failure.

Since that initial meeting in Manchester, a few years ago, these mums have gone from strength to strength. The PPCM patients, led by Pumping Marvellous Patient Educator Emma Taylor, have produced an awareness booklet – Pregnancvy and Your Heart – and one of the first PPCM patient tool kits in the world – A Marvellous Guide to Peripartum Cardiomyopathy.

Thanks to very generous support of media agency, Portland Communications, a new, exciting, ground-breaking project has just commenced. A Peripartum Cardiomyopathy PPCM steering committee, made up of patients and specialist clinicians, are now looking to develop a first-of-its-kind strategy on awareness of the condition and the promotion of best practice to both the clinical community and the general public.

Further details are to follow.

“Today has been a huge positive step for PPCM mothers and their families.” – Angela Graves

Pictured Left to Right: Julie Bartlett – Midwife and Pumping Marvellous Patient Educatort; Katherine Martin – Cardiac Research Nurse at Kings College, Emma Taylor – Pumping Marvellous Patient Educator, Dr Mark Petrie – Consultant Cardiologist, Golden Jubilee Glasgow, and Angela Graves – Pumping Marvellous’ Clinical Lead, and Heart Failure Nurse.

Big thanks to Judith and Amy from Portland (Not pictured.)

Posted Under: Heart failure, Heart failure patient information, Heart failure patient support, Patient News, What is heart failure