Who we are

The Pumping Marvellous Foundation is the UK’s leading patient led Heart Failure Charity in the UK and our registered charity number is 1151848 in England and Wales, our Scottish Charity registration number is pending. We are also registered as a company in England and Wales under registration number 08370761.

If you are under 18

If you are 18 or under, you must get your parent/guardian’s permission before you provide any personal information to us on this Website. If you do not have permission, you are not allowed to give us your personal information.

Dependence on information

We provide broad information about medical issues and treatments. The information is not formal advice and should not be treated as such. The information contained on our site or in any communication we may make, unless expressly stated to the contrary, is of a general nature and should not be relied on in place of professional, medical or other advice appropriate to your specific circumstances.

We accept no liability or responsibility for any loss or damage or other harm arising from any dependence placed on such information by the recipient of such information or any other person who relies on any of its contents.

Any information on this site should not be relied on in any court or similar proceedings as evidence.

Intellectual property

This website and content are protected by copyright laws and treaties around the world. All such rights are reserved. We are the owner and licensee and therefore have the intellectual property rights to our site and it’s content.

We allow you to print one copy and download information for your personal use including extracts of text. You may distribute and draw to the attention of others to material posted on our site.

You must not modify any printed papers, digital files or any other copies of any materials you have printed off or downloaded in any way. Regarding images, illustrations whether photographic or not including video or audio text must not be separated from the accompanying image.

As authors of material on our site must always be acknowledged. A copy of our brand guidelines can be found here and must be complied with.

No part of the materials on our site must be used for commercial reasons apart from with specific consent from the Trustees or CEO.

Do not print, download or copy any of this site and it’s content in breach of the terms. At our option we have the right to request a return or destruction of any copies of the materials you have made.

Information policy

All the information we publish whether online or offline and in whatever format, printed or digital – goes through a stringent checking process to make sure that as far as possible it is factually accurate and supported by research evidence.

We work with our beneficiaries to create a demand which is then written by patients and carers who either have a diagnosis or who have to manage with the effects of heart failure. This is then proofed and checked for medical accuracy by our clinical team and we consult external experts, as appropriate, on all information before publication, including:
  • Consultant Cardiologists
  • General Practitioners
  • Advanced Nurse Practitioners
  • Registered Rehabilitation Practitioners

Any information provided by The Pumping Marvellous Foundation is for general information only and is not intended to provide personal medical advice. We always suggest that you consult your own Doctor or Nurse on your specific requests. We do not replace any advice you are given by your Healthcare professional.

If you have questions or concerns about individual health please ensure you either contact your GP, specialist heart failure nurse or cardiologist. If you have any questions then please email angela.graves@pumpingmarvellous.org or dawn.robinson@pumpingmarvellous.org

Privacy Policy

This privacy policy is for this website www.pumpingmarvellous.org and served by The Pumping Marvellous Foundation and governs the privacy of its users who choose to use it.

The policy sets out the different areas where user privacy is concerned and outlines the obligations & requirements of the users, the website and website owners. Furthermore the way this website processes, stores and protects user data and information will also be detailed within this policy.

The Website

This website and its owners take a proactive approach to user privacy and ensure the necessary steps are taken to protect the privacy of its users throughout their visiting experience. This website comply’s to all UK national laws and requirements for user privacy.

Use of Cookies

This website uses cookies to better the users experience while visiting the website. Where applicable this website uses a cookie control system allowing the user on their first visit to the website to allow or disallow the use of cookies on their computer / device. This complies with recent legislation requirements for websites to obtain explicit consent from users before leaving behind or reading files such as cookies on a user’s computer / device.

Cookies are small files saved to the user’s computer’s hard drive that track, save and store information about the user’s interactions and usage of the website. This allows the website, through its server to provide the users with a tailored experience within this website.
Users are advised that if they wish to deny the use and saving of cookies from this website on to their computers hard drive they should take necessary steps within their web browsers security settings to block all cookies from this website and its external serving vendors.

This website uses tracking software to monitor its visitors to better understand how they use it. This software is provided by Google Analytics which uses cookies to track visitor usage. The software will save a cookie to your computers hard drive in order to track and monitor your engagement and usage of the website, but will not store, save or collect personal information. You can read Google’s privacy policy here for further information [ http://www.google.com/privacy.html ].

Other cookies may be stored to your computers hard drive by external vendors when this website uses referral programs, sponsored links or adverts. Such cookies are used for conversion and referral tracking and typically expire after 30 days, though some may take longer. No personal information is stored, saved or collected.

Contact & Communication

Users contacting this website and/or its owners do so at their own discretion and provide any such personal details requested at their own risk. Your personal information is kept private and stored securely until a time it is no longer required or has no use, as detailed in the Data Protection Act 1998. Every effort has been made to ensure a safe and secure form to email submission process but advise users using such form to email processes that they do so at their own risk.

This website and its owners use any information submitted to provide you with further information about the products / services they offer or to assist you in answering any questions or queries you may have submitted. This includes using your details to subscribe you to any email newsletter program the website operates but only if this was made clear to you and your express permission was granted when submitting any form to email process. Or whereby you the consumer have previously purchased from or enquired about purchasing from the company a product or service that the email newsletter relates to. This is by no means an entire list of your user rights in regard to receiving email marketing material. Your details are not passed on to any third parties.

Email Newsletter

This website operates an email newsletter program, used to inform subscribers about products and services supplied by this website. Users can subscribe through an online automated process should they wish to do so but do so at their own discretion. Some subscriptions may be manually processed through prior written agreement with the user.

Subscriptions are taken in compliance with UK Spam Laws detailed in the Privacy and Electronic Communications Regulations 2003. All personal details relating to subscriptions are held securely and in accordance with the Data Protection Act 1998. No personal details are passed on to third parties nor shared with companies / people outside of the company that operates this website. Under the Data Protection Act 1998 you may request a copy of personal information held about you by this website’s email newsletter program. A small fee will be payable. If you would like a copy of the information held on you please write to the business address at the bottom of this policy.

Email marketing campaigns published by this website or its owners may contain tracking facilities within the actual email. Subscriber activity is tracked and stored in a database for future analysis and evaluation. Such tracked activity may include; the opening of emails, forwarding of emails, the clicking of links within the email content, times, dates and frequency of activity [this is by no far a comprehensive list].
This information is used to refine future email campaigns and supply the user with more relevant content based around their activity.

In compliance with UK Spam Laws and the Privacy and Electronic Communications Regulations 2003 subscribers are given the opportunity to un-subscribe at any time through an automated system. This process is detailed at the footer of each email campaign. If an automated un-subscription system is unavailable clear instructions on how to un-subscribe will by detailed instead.

External Links

Although this website only looks to include quality, safe and relevant external links, users are advised adopt a policy of caution before clicking any external web links mentioned throughout this website. (External links are clickable text / banner / image links to other websites) The owners of this website cannot guarantee or verify the contents of any externally linked website despite their best efforts. Users should therefore note they click on external links at their own risk and this website and its owners cannot be held liable for any damages or implications caused by visiting any external links mentioned.

Adverts and Sponsored Links

This website may contain sponsored links and adverts. These will typically be served through our advertising partners, to whom may have detailed privacy policies relating directly to the adverts they serve.

Clicking on any such adverts will send you to the advertisers website through a referral program which may use cookies and will track the number of referrals sent from this website. This may include the use of cookies which may in turn be saved on your computers hard drive. Users should therefore note they click on sponsored external links at their own risk and this website and its owners cannot be held liable for any damages or implications caused by visiting any external links mentioned.

Social Media Platforms

Communication, engagement and actions taken through external social media platforms that this website and its owners participate on are custom to the terms and conditions as well as the privacy policies held with each social media platform respectively.

Users are advised to use social media platforms wisely and communicate / engage upon them with due care and caution in regard to their own privacy and personal details. This website nor its owners will ever ask for personal or sensitive information through social media platforms and encourage users wishing to discuss sensitive details to contact them through primary communication channels such as by telephone or email.

This website may use social sharing buttons which help share web content directly from web pages to the social media platform in question. Users are advised before using such social sharing buttons that they do so at their own discretion and note that the social media platform may track and save your request to share a web page respectively through your social media platform account.

Shortened Links in Social Media

This website and its owners through their social media platform accounts may share web links to relevant web pages. By default some social media platforms shorten lengthy urls [web addresses] (this is an example: http://bit.ly/zyVUBo).

Users are advised to take caution and good judgement before clicking any shortened urls published on social media platforms by this website and its owners. Despite the best efforts to ensure only genuine urls are published many social media platforms are prone to spam and hacking and therefore this website and its owners cannot be held liable for any damages or implications caused by visiting any shortened links.

Resources & Further Information

v.1.2 March 2015

Pumping Marvellous Foundation

Suite 111, Business First

Millennium City Park

Millennium Road

Preston PR2 5BL

UK

Online Community

All our online communities including third party platforms .eg. Facebook, Twitter and this list in not limited to, is moderated and we do not display the full names of individuals nor addresses. The posting of personal information on a discussion board means your information is publicly accessible. Such information can be viewed online and collected by third parties. We are not responsible for the use of information by such third parties. We strongly recommend all registered users to keep their postings anonymous. We also recommend you avoid sharing any personal information that can be used to identify you (such as your name, age, address, name of employer). We are not responsible for the privacy of any identifiable information that you post in our online communities.

Our Liabilities

Information displayed on our site or contained in any communication we may make is provided without any guarantees, conditions or warranties as to its accuracy.

To the extent permitted by law, we and third parties connected to us expressly exclude:

  • All conditions, warranties and other terms which might otherwise be implied by law.
  • Liability for any direct, indirect or consequential loss or damage incurred or suffered in connection with our site or in connection with the use, inability to use, or results of the use of our site, any websites linked to it and any materials or information posted on it, or contained in any communication we may make, including, without limitation, any liability for, loss of income or revenue, loss of business or opportunities, loss of profits or contracts, loss of anticipated savings, loss of data, loss of goodwill, wasted management or office time; or for any other loss or damage of any kind, however arising and whether in tort (including negligence), contract or otherwise, even if foreseeable.

We do not seek to exclude liability for death or personal injury arising from our negligence, nor our liability for fraudulent misrepresentation or any other liability which cannot be excluded or limited at law.

English courts will have exclusive jurisdiction over any claim arising from, or related to, a visit to our site although we retain the right to bring proceedings against you for breach of these conditions in your country of residence or any other relevant country.

A dispute, claim or terms of use breach arising out of or in connection with them or their subject matter or formation (including non-contractual disputes or claims) shall be governed by and construed in accordance with the law of England and Wales.

Changes to our policies

We reserve the right to change our policies as and when is necessary, please check back occasionally to see our revisions. We do review our policies. Our online policies were last reviewed in March 2015.

Questions or concerns

If you have any questions or concerns around our website please contact us using this form