Who, What, Why?
We are the Pumping Marvellous Foundation, the UK’s heart failure patient-led charity. Find out more about why we do what we do.
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Clinical Trials
CardioTrials
What is CardioTrials?
CardioTrials is a platform that matches people with heart failure to medical research that may be of interest and benefit to them. It is a unique, patient-led initiative run by the Pumping Marvellous Foundation. Medical research is the engine that will deliver better solutions to many of the problems faced by people with heart failure and those who care for them, formally or informally. With assistance from Professors John Cleland and Mark Petrie from the Robertson Centre for Biostatistics at the University of Glasgow, the Pumping Marvellous Foundation has developed a new platform to improve the visibility of trials in heart failure for people living with heart failure and healthcare professionals alike. We believe everyone should have the opportunity to participate in medical research that best suits their interests, needs and requirements.
Patients are in complete control of what they choose to do –they can decide which trials are of interest, how often they would need to attend for visits (assuming the trial is not virtual) and the proximity of the nearest clinic.
Signing up is simple and free. Visit our platform to register today!
Why is CardioTrials important?
In a poll conducted in July 2019, 87% of patients with heart failure had never been approached to participate in a clinical trial. This is a lost opportunity to improve their care.
It is imperative that clinical trials engage with patients who are representative of the clinical problems that they are designed to investigate. Sufficient numbers must be enrolled to ensure the studies have enough power to show important treatment effects that will improve patient care. Unfortunately, some trials cannot recruit sufficient numbers to give the outcomes enough statistical validity and potentially life-changing treatments are never proved. Rapid recruitment gets quick answers and enables more problems to be addressed. Patients and trialists (from many clinical disciplines) are coming together to identify key questions that affect their daily lives and the advice and treatment on offer.
To find out more about clinical trials, please view our general information page.
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Secret sauce
Dictionary – “A special quality or feature regarded as the chief factor in the success of something or someone.”
So, what’s your “Secret Sauce?” What makes you tick?
At Pumping Marvellous, we know it takes some real inner drive to live well with heart failure. Pumping Marvellous are Secret Sauce catalysts; we draw out people’s inner Secret Sauce, people’s superpowers and enable other people to learn from other people’s experiences.
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The Pumping Marvellous Foundation are a UK patient led heart failure charity. To find out how you can get involved click below.
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The Pumping Marvellous charity shop is full of our own branded merchandise. By purchasing our merchandise, you will help us fund our projects.
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