What is advocacy
Advocacy in heart failure seeks to ensure that people, particularly those who are most vulnerable, are able to:
- Have their voice heard on issues that are important to them.
- Defend their rights
- Have their views and wishes genuinely considered when decisions are being made about them.
Advocacy is a process of supporting and enabling people to:
- Create and express their views and concerns.
- Access information and services that are pertinent to them
- Be a voice around their rights.
- Explore choices and options
The Pumping Marvellous Foundation is an advocate for heart failure sufferers and their families. We provide heart failure advocacy support for heart failure patients and their families when they need it. We might help you access information you need or in a supportive role talk through options with you and your family. You may want us to advocate for you where we speak for you in situations where you don’t feel able to speak for yourself.
Our advocates are our patient educators, they will spend time with you to understand your needs. Advocacy can be helpful if you find it difficult to make your views known.
Other forms of advocacy we get involved in include political, economic and institutional and these are described below.
Advocacy doesn’t just work at a national level and proves to be a very effective persuasive tool not only at a regional level but also at a local like with CCG’s, GP surgeries or acute trusts.
Fancy helping us or becoming a patient educator?
Sounds a bit underhand using the phrase “unofficial” but we would like everybody to be an advocate for their rights and needs. We are more than happy to push our name out there and to raise the awareness of heart failure and it’s challenges.
So to be an official advocator for the Pumping Marvellous Foundation you need to enroll to be a patient educator. To find out how to become a patient educator and the benefits follow this link.