Category: heart failure policy

Pumping Marvellous Foundation statement and response to the Observer article dated 23rd July 2023

“Revealed – Drug firms funding UK patient groups that lobby for NHS approval of medicines.” The Pumping Marvellous Foundation receives income from a wide variety of sources such as for-profit companies, trusts, grants, fundraiser activities, online shop, and the NHS. These funds are used for – Helping patients – Creating, printing, and distributing patient educational […]

July 23, 2023

Living well with Heart Failure report 2022

Part of our mission at the Pumping Marvellous Foundation is to raise the profile of Heart Failure, which we have always felt, doesn’t get the coverage it should. As a result, it has a lower profile than other conditions with similar or lesser levels of incidence, both amongst the public and policy makers. Working with our colleagues […]

April 7, 2022

Legal right to 2 week review of patients with suspected heart failure (HF)

The 2010 NICE guidelines recommend that patients with suspected HF should be reviewed by a specialist – within 2 weeks for urgent cases. Patients are presently waiting up to 20 weeks for specialist assessment. More details The Government should ensure that this recommended right to a review within 2 weeks is set out in law. […]

March 24, 2021

NICE Impact Report Cardiovascular Disease Management

Nice have published their Impact Report on Cardiovascular Disease Management 2021. The Pumping Marvellous Foundation and it’s patients have had an input into this report and provided important insights into the shaping of the report. The Pumping Marvellous Foundation have an important role in providing insights to organisations like NICE, the NHS and other stakeholders […]

February 2, 2021

Impact of COVID-19 and heart failure care in the UK

Findings revealed of first patient survey into the impact of COVID and Heart Failure care in the UK Under 60s report the highest levels of anxiety 65% have reported disruption to care appointments Following on from a recent survey around hospital admissions during COVID-19, a study has revealed the reasons WHY many people with heart […]

October 20, 2020

NHS Long Term Plan

Pumping Marvellous Foundation Statement around the NHS Long Term Plan The Pumping Marvellous Foundation read with interest the NHS Long Term Plan and how we as a movement should not focus solely on the paragraph relating to heart failure but look further afield to how we can segment the plan and take forward the opportunities […]

January 15, 2019

Marvellous Mentors

Marvellous Mentors GM Thinking about health system challenges differently. Our latest project with Greater Manchester Health and Social Care Partnership. Thinking about plugging service provision in #heartfailure by raising the profile of the condition and how to get the patient to the specialist where their prognosis is better. Marvellous Mentors GM introduces our Atrium 51 Launchpad […]

August 2, 2018

Heart Failure Nurse Audit Data

Heart Failure Nurse Audit Data The Pumping Marvellous Foundation has just finished completing the first national audit of the provisioning of heart failure nurse services across the UK. The Pumping Marvellous Foundation is beginning to release the heart failure nurse audit data to coincide with heart failure awareness week. The Foundation knows that patients and […]

May 12, 2018

Med Tech – Keeping Britain Working

The Med Tech Group are calling on NHS England to rethink ‘sticking plaster’ approach to medical technology. A report, launched today, has identified how better use of medical technology can help the Government save up to £476m in welfare spending through improved use of medical technology. The Medical Technology Group have updated the 2011 study on […]

November 29, 2017

Clinical Management of Heart Failure

Clinical Management of Heart Failure in Europe A new report out focussing on the state of play in Europe around the clinical management of heart failure has just been published by the Heart Failure Policy Network. The group is an independent, multidisciplinary group working to raise awareness of heart failure across Europe. It identifies many […]

May 6, 2017

Press Release :: Parliamentary Heart Failure Inquiry

Parliamentary heart failure inquiry highlights 10 key recommendations as to where the NHS could improve treatment to people diagnosed with Heart Failure “The Pumping Marvellous Foundation, the UK’s patient led Heart Failure Charity welcomes 10 key recommendations which are essential to improving the care for Heart Failure patients in the UK” Tuesday 13th September 2016 […]

September 13, 2016

Alliance for Heart Failure Press Release

Alliance for Heart Failure CALLS ON NHS TO DELIVER ambitious Parliamentary Inquiry report Experts say heart failure services have room for improvement Tuesday 13th September 2016 The Alliance for Heart Failure (AHF) has called for immediate action from NHS England to draw up and implement a viable timetable to deliver the recommendations of the ‘Living […]

September 13, 2016

National Heart Failure Audit 2014/15

National Heart Failure Audit 2014/15 published “The National Heart Failure Audit Report of 2014/15 continues to draw our attention to the high mortality rates for hospitalized heart failure patients. It also highlights potential solutions. Patients with heart failure have a lower mortality during and after the admission if they are cared for by cardiologists and […]

July 21, 2016

MedTech Week: Heart Failure Patient Innovation

For MedTech Week, leader of HF advocacy and the heart failure patient conversation, Nick Hartshorne Evans explains how and why patient-led heart failure communities are driving access to the latest heart failure information, innovations and therapies MedTech Week: How to Enable Access to Innovation in Heart Failure for Patients? QUESTION: As an active leader in […]

June 17, 2016

Treating Heart Failure – Open Letter to The Telegraph

    Nick Hartshorne Evans’ Voices Concern in Open Letter to The Telegraph – Treating Heart Failure Following news from the recent studies about a 36% rise in heart failure hospitalisations in the past decade, Pumping Marvellous founder, Nick Hartshorne Evans’ sends an open letter to The Telegraph raising his concerns about the growth and […]

June 17, 2016