The Pumping Marvellous Foundation’s Heart Failure Clinical Board

The Pumping Marvellous Heart Failure Clinical Board comprises of the key elements of a patients team. Our members led by the Chair of the Board Professor Martin Cowie act as an independent advisory board with no responsibility or accountability as to the actions of the charity.

The Purpose of the Pumping Marvellous Clinical Board

The purpose of the Heart Failure Clinical Board is to guide the charity in making the right decisions around the health and wellbeing of heart failure patients across the United Kingdom – offering factual and real world experience from the clinical and payer perspective.

The Heart Failure Clinical Board will have access to all of the charity’s resource and will also act to create new opportunities for the charity. The Heart Failure Clinical Board’s role is advisory and is not binding on the Charity.

The Charity will indemnify the Heart Failure Clinical Board against legal claims based on its advice, provided the members of the Heart Failure Clinical Board have acted in good faith and have given advice in keeping with the conduct of their professional positions.

Please find the full terms of reference here

Professor Martin Cowie

“Professor Cowie is a cardiologist with a major focus on heart failure, working at the Royal Brompton Hospital in London. He also runs a large clinical research group based at Imperial College London. He is delighted to help support the Pumping Marvellous Foundation. Improving communication and education about heart failure, listening to the patient (and family’s) perspective on living well with this condition, and ensuring NHS services provide good care and a good experience of care, are of vital importance to him. He works closely with NICE on its shared decision making work, and its guidelines and quality standards, and helped set up (and then Chair) the British Society for Heart Failure. For more details please visit:
http://www.rbht.nhs.uk/healthprofessionals/consultants/cowie/ or follow him @ProfMartinCowie

Lynda Blue

Lynda has many years’ experience working as a nurse and manager in hospital and community healthcare settings. Her current role is heart failure nurse advisor to support an integrated heart failure project across Guys and St Thomas NHS Foundation Trust, Kings College Hospital NHS Foundation Trust and the communities of Lambeth and Southwark.

Prior to this role Lynda worked at the British Heart Foundation (BHF). Lynda’s roles at the BHF included; Healthcare Innovation Programme Manager, Regional Service Development Manager for Scotland and Northern Ireland and Healthcare Professionals project manager for Scotland and North of England.

Prior to working at BHF Lynda designed, established and managed a Heart Failure Nurse Service in Glasgow and played a major part in a randomised controlled trial of specialist nurse intervention in heart failure (Blue et al BMJ 2001).

Lynda is a Nurse Fellow of the European Society of Cardiology. As a result of her expertise in heart failure Lynda has presented at many international conferences, and has a number of publications.

Dr Rani Khatib

A consultant pharmacist in cardiology and cardiovascular research with nationally and growingly internationally recognised clinical pharmacy experience. Robust higher academic teaching expertise and a growing research portfolio. He leads the medicines optimisation agenda across secondary and primary care pathways for Heart Failure and Ischaemic Heart Disease in Leeds. Well published, research grants holder, principal investigator and co-investigator of several trials with specific interest in medicines adherence. Science Committee member at the European Society of Cardiology – Council on Cardiovascular Nursing and Allied Professions. Earned multiple recognitions and awards for innovation and excellence in patient care. Honorary Senior Lecturer at the University of Leeds and Honorary Clinical Research Fellow at the University of Bradford. Chair of the Yorkshire and North-east Cardiovascular Pharmacy Network (YNCPN)

Link to Dr Rani Khatib profile on the Leeds University Website

Dr Dargoi Satchi

Dr Dargoi Satchi is a Heart Failure Consultant Cardiologist at the University Hospitals of North Midlands based at the Royal Stoke University Hospital.

Dargoi is a pioneer in Heart Failure and works seamlessly between hospital based care and primary based care in the community. Dargoi was a pioneer in 2013 where he set up the SHINE clinic.

The SHINE clinic was set up as a heart failure day clinic to provide specialist clinical care on an outpatient basis, including intravenous diuretics, specialist assessment, monitoring and intensive drug titration, along with self-management advice and psychological support.

The clinic was set up by a multidisciplinary heart failure team and accepted referrals from primary and secondary care. This type of care was only available to inpatients but now serves as hub for linking heart failure secondary care and primary care together to enable patients to have a better quality of life.

This has been a huge success and has now been replicated by many Heart Failure services across the country.

He has also been inspirational in our decision to create the comprehensive self management system for patients, the Marvellous Guide to Heart Failure.

Dargoi said about joining the Clinical Board of the Pumping Marvellous Foundation “I am over the moon to be involved with an organisation that helps empower people by making heart failure knowledge accessible and available to all – within a funky colour scheme.”

Professor Mark Petrie

Mark Petrie is Professor of Cardiology in the University of Glasgow.  Mark spent 23 years as an NHS doctor before transferring to his research post.  Mark has been a heart failure enthusiast throughout his career.  He is one of the Consultant Cardiologists who run the Scottish National Heart Failure Service (he was Director until 2015).  Mark has run the heart failure service in Glasgow Royal Infirmary since 2004 (alongside a great team of other cardiologists, nurses, pharmacists and medicine for the elderly).  Mark had the idea for the Scottish Heart Failure Hub which has championed all things heart failure in Scotland (he chaired this until 2016).  Mark remains closely involved in clinical services and is keen to see continuing improvements in all aspects of care.  He has published over 140 manuscripts including in the Lancet, New England Journal of Medicine and major cardiology journals.  Mark has worked with Pumping Marvellous but is very keen to see further patient-led improvements in care and also to involve patients in major, heart failure-improving research.

Mark Petrie University of Glasgow

Dr Clare Taylor – MBE

Dr Clare Taylor is an academic general practitioner combining research and teaching at the University of Oxford with clinical practice at her GP surgery. Her research focuses on the diagnosis of heart failure in primary care. She is passionate about involving patients and the public in research to ensure the most important questions can be identified and answered.

Clare is also a member of the NICE chronic heart failure guideline committee. She has been a strong advocate for GP trainees and new GPs as Chair of the trainee and new GP committees at the Royal College of General Practitioners and was awarded an MBE for services to General Practice in 2015.

Clare is delighted to join the Pumping Marvellous Clinical Board to bring the GP perspective. Read more about her work here